Robyn Smith1, Lisa Caterina1, Charlie Durazza1, Ms Sarah Powell
1Inherited Cancers Australia, Australia
Abstract:
Introduction:
Medically Induced Menopause (MIM) is a significant and often overlooked experience for individuals diagnosed with or at-risk of cancer. It occurs as a result of cancer treatments, or ovarian removal, causing an abrupt onset of menopause. Despite frequent discussions in support communities like Inherited Cancers Australia (ICA), little is known about psychosocial aspects and information needs of those experiencing MIM.
Methods:
In February 2025, ICA conducted an online survey to better understand the lived experiences of individuals with MIM. The survey, distributed via networks and social media, used convenience sampling and included both closed and open-ended questions, and descriptive statistics used to interpret the deidentified data.
Results:
764 survey responses were received. All respondents identified as female, 81% of whom were under 55 years old. Of these, 27% carried a gene mutation linked to inherited cancer risk, and 72% had a current or previous cancer diagnosis. Quantitative analysis revealed that 61% of respondents had negative or somewhat negative feelings about their experience with MIM. 57% found it difficult to obtain specific information about MIM, and 18% sought advice from a menopause specialist. Seeking information from social media was ranked 4th, being used by 43% who are seeking information about MIM. Key themes in qualitative analysis include: conflicting or inadequate information, mixed feelings about treatment versus MIM symptoms, burden of physical symptoms, and limited support from healthcare professionals.
Discussion:
The findings suggest that a large proportion of respondents felt dissatisfied with their experience, which was compounded by the difficulty many experienced in accessing reliable information to address challenges. The trade-offs between cancer treatment or risk reduction and the debilitating physical symptoms of MIM were also a prominent concern. Furthermore, the lack of adequate support from medical professionals, described as limited and dismissive.
Conclusion:
These findings from this survey emphasise the need to address an existing gap in tailored, accessible information and improved support systems for women experiencing MIM.