A/Prof. Erin Morton1, Dr Kelly Teagle2, Dr Linda Dear3, Dr Emma Rees4, Johanna Wicks, Naomi Reeves, Dr Maria Alejandra Pinero de Plaza1, Katie Harris5, Dr Liz Buckley1, A/Prof Murthy Mittinty1, Gillian Mason6, Janey Barrow1, Dr Laura Edney1
1Flinders University, Bedford Park, Australia
2Wellfemme – Women’s Health Services, Weston , Australia
3Menodoctor, Bethlehem, NZ
4Femma, Perth, Australia
5Zebra Research, Sydney, Australia
6University of Newcastle, New Lambton Heights, Australia
Aims – To evaluate early trends in Australian health system utilisation and consumer preferences for peri-/menopause care, as reported via the inaugural Virtual regIstry of perI-/menopause in AusTrALia (VITAL).
Methods – VITAL was designed by a researcher with >20 years’ clinical trials & ANZ registry expertise, with lived experience of peri-/menopause, to collate consumer feedback on peri-/menopause experiences, treatment preferences, & priorities. Enhanced by a stakeholder consortium of >250 experts, VITAL recently launched to national dissemination via innovative methodologies & cutting-edge technology, surpassing ACSQHC clinical quality registry guidelines. VITAL collates information not just on the clinical diagnosis & treatment pathways experienced, but also on the pathways consumers prefer.
Results – Analysis of VITAL registry data collected to date will include current self-reported health system utilisation and health service preferences by demographics, as advised by VITAL’s peri-/menopause community.
Key Conclusions – VITAL is the inaugural Australian peri-/menopause registry, and world-first consumer-led, consumer-driven, & consumer-directed registry, to enable early insight into how well we, as clinicians & researchers, are responding to the needs & wants of our Australian peri-/menopause community. Preliminary evidence presented here provides the first evidence for health care utilisation and preferences for this cohort.
Biography:
A/Prof Morton is an internationally renowned researcher with >20 years’ experience in clinical trials, health data, & ANZ clinical quality registries, with impact on international guidelines in 3 disciplines to date. Upon developing lived experience of peri-/menopause, she brought together a national stakeholder consortium of >250 experts to advise on her VITAL inaugural peri-/menopause registry concept; this particular project includes Clinicians Kelly Teagle, Linda Dear & Emma Rees; consumer representatives Naomi Reeves & Johanna Wicks, digital health experts Gillian Mason, Alejandra Pinero de Plaza, & Janey Barrow, & researchers & analysts Katie Harris, Murthy Mittinty, Liz Buckley, & Laura Edney.